[PAPER] Investigating Health Management Practices of
Individuals with Diabetes
Lena Mamykina, Siemens, USA
Elizabeth D. Mynatt, Georgia Institute of Technology, USA
David R. Kaufman, Columbia University, USA
The paper presents analysis of diabetes self-management
practices using qualitative interviews, an observational study
and a technology probe. We draw implications for the design
of health monitoring applications.

Researchers conducted three studies during a 6 month period: structured interviews (n=15), observation of diabetes support group , and cognitive probe study (n = 2). They found that there is a need for technology to help chronically ill. Data needs to be presented with correlations and careful visualizations to avoid confirmation bias. Ease of use and accuracy will also play a roll. They were primarily interested in activity in relation to glucose level.

Questions

1. Why type 2 - why not type 1?

We will look at that in th efuture. Type 1 tends to be younger.

2. Did you see any excessive checking?

Both participants did it regularly. There is definitely a draw for a regular life style. It is very unfortunate -

they cannot afford to have the flow. For a severe case of diabetes, there is a danger of life and death. The data is

there and it is upto them to decide when to look at it

3. [Clemson] Some aspect of current information visualization may lead to biases? What aspects may be causing bias

and how will you fix it?

One of the things that was very clear (lots of literature), they had a hypothesis coming into this. Very actively

ignoring everything that was going into this. THere was a need to develop some techniques for debiasing information

- especially for this population.

Debiasing is not an easy thing to do. Somehow breaking this confirmation that their seeking is needed.

4. [Northeastern] Early in the study, 2 subjects had different behaviors. Were their behaviors that carried thorugh

the whole study?

Their attitudes kind of reversed. Once they saw the raise in blood sugar after the cereal, they want to partiicpate longer to see if things would change.

5. [Stanford] Elaborate on some of your ideas on persuasive user interfaces...

It is in submission now, but please come later.

6.Your study is too small to think about this. But do you think there is a relation about the kinds of people you are picking and the kind of information that is shown.

I agree with you. Our sample size was heterogenous and they want to manage their health. If we reached further, there would be serious differences.

[PAPER] Tensions in Designing Capture Technologies for an
Evidence-Based Care Community
Gillian Hayes, Gregory Abowd, Georgia Institute of
Technology, USA
An analysis of privacy, surveillance, and awareness concerns
with regard to evidence-based healthcare and education. The
design of socially appropriate capture technologies for the
community of stakeholders in this domain.

How to have remote care givers access to video with protecting privacy of others.

Care or surveillance

Selective archiving favorite among care givers

Questions

1. [U. of York] Youhave a standard view of privacy - of who sees the video and what they use it for. Was it just for use by other professionals.

That is one of th ethings we were trying to probe out with our interviews. It is dependent on the particular set of caregivers. There are some schools in a trustful setting that will share this data. BUt it is a good question and we

will talk to them about this. Like deciding when to capture, it is best to decide at a local level.

[There is also an issue of informed consent. Particularly with parents and other groups. Did you come across these forms of problems?]

Yes, there is certainly a lot of issues with informed consent. Especially with parents are low educated, low income and the just want the best for their kids. There are some ethical questions. We need to stand by the care of the child in question. We have to make sure it does not get in the way of caring for this child.

2. Selective archiving - did people have different questions? Did you explain it to non professionals?

It was explained similarly to professional and non-professionals. So even professionals are not technologically saavy in this setting.

For the most part the kinds of responses we got were "that's great!" These were the two bits of concern that really echoed for selective archiving.

There were some concerns about high up professional caregiveers - are we really going to give this to our teachers, parents, etc. What if they do not grab enough data or do the wrong thing? MOst people said with particular behavior, they could pass this on to others.

3. [PARC] What is an example artifact that people in care communities used to share the video and how did the video correspond with the spiral notebook.

In the past the way they shared video was by making a VHS tape or DVD and send it home within some package or play them at a parent meeting.

One person embeds video in powerpoint and teachers were really impressed. But this is rare.

We did not have them use the videos in the schools and in the homes. We are in the middle of doing an actual study in a school.

[CHI NOTE] Pride and Prejudice: Learning How Chronically Ill People Think about Food
Katie A. Siek, Kay H. Connelly, Yvonne Rogers, Indiana
University, USA
Presents a formative study exploring how chronically ill
people organize food and read nutrition indicator icons.
Can assist researchers develop nutrition applications and
motivate participant usage for patient populations.

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Healthcare Session

[PAPER] Investigating Health Management Practices of
Individuals with Diabetes
Lena Mamykina, Siemens, USA
Elizabeth D. Mynatt, Georgia Institute of Technology, USA
David R. Kaufman, Columbia University, USA
The paper presents analysis of diabetes self-management
practices using qualitative interviews, an observational study
and a technology probe. We draw implications for the design
of health monitoring applications.

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[CHI NOTE] Pride and Prejudice: Learning How Chronically Ill People Think about Food
Katie A. Siek, Kay H. Connelly, Yvonne Rogers
Indiana University, USA

A low fidelity paper prototyping study that helped informed a design for a mobile application to help low literacy skilled dialysis patients monitor their fluid and sodium consumption. They found you have to make patients feel proud and excited to use the application - you do not necessarily have to "dumb down" your design.

Questions

1. Did you try pie charts because there has been some research in that area?

No we did not try pie chart. We restricted ourselves to vertical barcharts because this is how renal dietitians we

work with visualize the data.

2. Have you thought about having dialysis patients trade consumption information for them to see how everyone is

complying?

No for two reasons. First, privacy reasons. This is very sensitive data - in the wrong hands it can have very

adverse effects. For example, if an insurance company got this information and decided they would not cover a

patient anymore because he was noncompliant. Also, our population is lower income and do not have access to

resources such as internet. Thus, we would have to create an ad hoc network to transfer information.

3. Have you talked to Weight Watchers about this application? It seems they would be interested in this type of thing with the barcode application.

We have talked to some dietary companies.

4. [Georgia Tech]Did you look at how culture affected your populations' food organization?

No we did not. We found they mostly used categorization from the education they receive from their renal nutritionists. HOwever, that is a good point that we'll look into in the future.

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